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Jackson Stormes:A Difficult and Amazing Journey

       Living with Dravet Syndrome and all the complications

Photo Gallery

2011 https://jacksonstormes.webs.com/apps/photos/ 2011 Jaxs and Joe, RN waiting for mom to graduate as a RN https://jacksonstormes.webs.com/apps/photos/photo?photoID=149583111 149583111 July 2011 Hackensack ER/Admit Jaxs with Kipper https://jacksonstormes.webs.com/apps/photos/photo?photoID=144095927 144095927 Jaxs and Joe, RN waiting for mom to graduate as a RN https://jacksonstormes.webs.com/apps/photos/photo?photoID=149583112 149583112 CHOP Prom Trip to Philly https://jacksonstormes.webs.com/apps/photos/photo?photoID=144096611 144096611 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590662 149590662 CHOP Prom 2011 Steps to the dance with sissy https://jacksonstormes.webs.com/apps/photos/photo?photoID=144096612 144096612 CHOP Prom 2011 https://jacksonstormes.webs.com/apps/photos/photo?photoID=144096613 144096613 CHOP Prom 2011 https://jacksonstormes.webs.com/apps/photos/photo?photoID=144096614 144096614 CHOP Prom 2011 https://jacksonstormes.webs.com/apps/photos/photo?photoID=144096615 144096615 CHOP Prom 2011 https://jacksonstormes.webs.com/apps/photos/photo?photoID=144096616 144096616 CHOP Prom 2011 https://jacksonstormes.webs.com/apps/photos/photo?photoID=144096617 144096617 CHOP Prom 2011 https://jacksonstormes.webs.com/apps/photos/photo?photoID=144096618 144096618 CHOP Prom 2011 https://jacksonstormes.webs.com/apps/photos/photo?photoID=144096619 144096619 Kipper at Prom 2011 Kipper all dressed up for the prom. Not impressed with his new look. https://jacksonstormes.webs.com/apps/photos/photo?photoID=144096620 144096620 CHOP Prom 2011 Time to go home now https://jacksonstormes.webs.com/apps/photos/photo?photoID=144096621 144096621 CHOP Prom 2011 So tired https://jacksonstormes.webs.com/apps/photos/photo?photoID=144096622 144096622 CHOP Prom 2011 https://jacksonstormes.webs.com/apps/photos/photo?photoID=144096623 144096623 CHOP Prom 2011 Other use for the feather boa.... mustache disguise https://jacksonstormes.webs.com/apps/photos/photo?photoID=144096624 144096624 I'm Thankful for... Joe made the Turkey. So did mom, Sid and Purr.. https://jacksonstormes.webs.com/apps/photos/photo?photoID=144098366 144098366 Thanksgiving day without seiures and lots of Words Jaxs wishing a Happy thank you Give me. https://jacksonstormes.webs.com/apps/photos/photo?photoID=144098367 144098367 Jaxs in a Bubble Watching Barney Cozy Sensory Place https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135586 144135586 Hope-Genes for Cure Bracelet Jeans for Hope Cause Donated Bracelet to Parents of Rare Genetic Disorder Children.. Great Cause... thank you https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135587 144135587 May 2011 Sid in the sun at Mom's RN/College Graduation at WCCC in Washington, NJ https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135588 144135588 May 2011 Mom's RN/College Graduation at WCCC in Washington, NJ https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135589 144135589 Summer 2011 Kipper with the surfer look https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135590 144135590 Fall 2011 Jaxs making conversation https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135591 144135591 Fall 2011 Sidnee and Jaxs in the Make A Wish Hot Tub https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135592 144135592 Halloween 2011 Sidnee as one of the Disney Princesses--Snow White https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135593 144135593 Halloween 2011 Kipper sharing his costume with Bentley for Halloween. Prisioners https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135594 144135594 Another Seizure Jaxs post-ictal with 1 hour seizure, after Ativan and Diastat, taking a nap with Terrah https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135595 144135595 Another Seizure Jaxs post-ictal with 1 hour seizure, after Ativan and Diastat, taking a nap with Kipper snoozing close by. Kipper is more comfortable https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135596 144135596 Christmas Present from Joe 2011 The best gift ever Joe. I love it and of course had to wear it to school. https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135597 144135597 Sissy got her braces off Sidnee without braces after only 11 months. Yay Sid https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135598 144135598 Jaxs with Santa 2011 Jaxs with his favorite buddy "Motorcycle" https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135599 144135599 Sidnee as herself Making faces again. Careful the face will freeze that way. https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135600 144135600 Jaxs Reading a Book with Kipper So Cute. They fell asleep together. https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135601 144135601 Jaxs Reading a Book with Kipper https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135602 144135602 Jaxs Reading a Book with Kipper https://jacksonstormes.webs.com/apps/photos/photo?photoID=144135603 144135603 Watching Barney, or Wiggle or Tubbies https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584408 149584408 Poppa trying to fix a computer https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584409 149584409 Just Sidnee https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584410 149584410 Sidnee with her computer https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584411 149584411 Jaxs and Joe, RN https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584412 149584412 Dressed Up Jaxs https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584413 149584413 Don't forget the shoes and socks https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584414 149584414 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590702 149590702 Almost time to be pinned https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584415 149584415 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590703 149590703 Prof Sprow and Mom https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584416 149584416 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590704 149590704 Granny Judy and Mom https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584417 149584417 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590705 149590705 Mom and Sid https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584418 149584418 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590706 149590706 Classmates https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584419 149584419 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590707 149590707 Mom https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584420 149584420 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590708 149590708 Pinning Ceremony https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584421 149584421 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590709 149590709 My trun https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584422 149584422 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590710 149590710 Candle Lighting Ceremony https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584423 149584423 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149598782 149598782 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590711 149590711 Poppa and Mom https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584424 149584424 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149598783 149598783 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590712 149590712 Sid, Poppa and Mom https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584425 149584425 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149598784 149598784 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590713 149590713 Sid, POppa and Mom https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584426 149584426 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149598785 149598785 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590714 149590714 Poppa and Mom https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584427 149584427 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149734948 149734948 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149598786 149598786 Sid, Jaxs and MOM https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584428 149584428 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149734949 149734949 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149598787 149598787 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590716 149590716 Sid, Jaxs and Mom https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584429 149584429 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149734950 149734950 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149598788 149598788 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590717 149590717 Sid, Jaxs and Mom and poppa https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584430 149584430 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149734951 149734951 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149598789 149598789 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590718 149590718 Sid, Jaxs and Mom and poppa https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584431 149584431 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149598790 149598790 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590719 149590719 Sid training kipper and bently https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584432 149584432 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149598791 149598791 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590720 149590720 WCCC Grauation https://jacksonstormes.webs.com/apps/photos/photo?photoID=149584433 149584433 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590721 149590721 ADN Graduation from WCCC with honors https://jacksonstormes.webs.com/apps/photos/photo?photoID=149585223 149585223 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149734955 149734955 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590722 149590722 ADN Graduation from WCCC with honors https://jacksonstormes.webs.com/apps/photos/photo?photoID=149585224 149585224 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590723 149590723 Kipper needs a bath https://jacksonstormes.webs.com/apps/photos/photo?photoID=149585225 149585225 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590724 149590724 Bathtime Kipper https://jacksonstormes.webs.com/apps/photos/photo?photoID=149585226 149585226 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590725 149590725 Poppa taking one of those Non-Napping sessions https://jacksonstormes.webs.com/apps/photos/photo?photoID=149585227 149585227 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590726 149590726 family morning with a clean kipper https://jacksonstormes.webs.com/apps/photos/photo?photoID=149585228 149585228 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590727 149590727 Kipper says cheese https://jacksonstormes.webs.com/apps/photos/photo?photoID=149585229 149585229 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590728 149590728 Jaxs in a box HIs favorite toy https://jacksonstormes.webs.com/apps/photos/photo?photoID=149585230 149585230 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590729 149590729 Peek a Boo https://jacksonstormes.webs.com/apps/photos/photo?photoID=149585231 149585231 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590730 149590730 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590731 149590731 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590732 149590732 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590733 149590733 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590734 149590734 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590735 149590735 https://jacksonstormes.webs.com/apps/photos/photo?photoID=149590736 149590736 https://jacksonstormes.webs.com/apps/photos/photo?photoID=150332176 150332176 https://jacksonstormes.webs.com/apps/photos/photo?photoID=151202300 151202300
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